Tuesday, January 02, 2007

A note from a friend...

Experimental method to estimate course of MS ?

I know that "they" (whoever they are) say that starting with sensory

symptoms is a good prognostic sign, but there is no way to predicts anyone's
disease course. The majority of people with MS will be progressive
eventually, with about fifty percent becoming secondary progressive (rather
than relapsing-remitting) by about 10 years after diagnosis. My first attack
was 1992 (optic neuritis) and I had no symptoms at all until I had a bad
attack in 1998. I started progressing a few years ago. I hadn't had any
relapses for over a year and figured I was progressive now and didn't have
to worry about relapses, but then I had an attack in June and another in
November, so my diseaseis what they call "progressive relapsing". I am still
able to live by myself, I drive, and I work (about 10-15 hours a week max,
compared to 80 (yes, eighty) at various times before). I walk with a cane,
but am getting a motorized wheelchair for bad days and long distances.

Since my attack in November, I was hospitalized for the IV steroids and then
went into Kessler for inpatient rehab for about a week and a half. I have
PT, OT, and speech coming to my house a few times a week. my neuro said he
wants me to continue taking Novantrone and add Copaxone, which I was on in
the past for over three years with no help. Recent research shows that those
two meds together may work better than either one alone. I've never had two
attacks this close together before (five months) so he wants to see if
putting them together will help.

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