Sue Ryder Care is urging government to act to avert a crisis in neurological care, after a report revealed critical information essential to plan efficiently for the needs of up to three million people does not exist.
The charity’s report Filling The Void: How Real Life Health Information Builds Better Services has revealed a ‘hidden population’ of people living with conditions including multiple sclerosis, Huntington’s disease, Motor Neurone disease and stroke who are unknown to health bodies. Crucially a lack of data is creating a very real barrier to ensuring they receive appropriate, effective and cost-efficient care.
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