Thursday, February 01, 2007

Tysabri stories

Hi Gary!
I'm glad to hear that you seem to be doing well on Tysabri! Would
you mind telling us a little more about yourself? How were you
doing beforehand, what ABCRs have you used in the past, how are you
feeling now? I am really interested in hearing everyone's Tysabri
stories - this drug is so new and I hate to rely on what I hear from
the drug company itself. Nothing beats hearing firsthand
experiences :)
Rebecca

Gary
.> wrote:
>
> Bill hang in there. Unfortunately Docs are the gatekeepers of our
meds. Some are only motivated by money. Your Doc if compassionate
should have written whatever needed to be written to get you the
tysabri. If he feels that it will hurt you is one thing. If he is
saying no because he feels it won't do any good, you need to talk to
another Doc. Who the heck made Docs all seeing and all knowing about
a new MS drug. They are giving the company line. I just had my 5th
infusion today. I am not exactly RR. Their has been some good
changes so far. Small changes but good changes. You need to take the
bull by the horns and get what you want. Good luck. Gary

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