Hi Sarah,
My name is Scott and I have Secondary Progressive MS. I was first dx'd with MS in late '89. In approximately '02 I began using a nasal spray medication known by its acronym DDAVP. It's not specifically an MS drug but my Neurologist prescribed it as a nightime alterrnative to many of the oral tablets often prescribed for uriniary retention problems in MS. Side effects for me are nonexistent so it may be worth a conversation with your Neurologist sometime if you're ever interested.
My best to you,
Scott

sarah wrote:

Life's been a whirlwind lately. I currently am finally diagnosed with ms. I know its not a blessing but atleast I know they can start treating it now.

My dr.s diagnosed me w/ ms because of a sudden onset of optic neuritis. With that , my symptoms and the lp that was positive, i was able to get a diagnosis of relapsing remitting ms.

My dr. offered me treatment said i could choose, yet, he said that he didnt think copaxone even though that was the one i was leaning towards wasnt strong enough so i asked him what he would do if this were him , he said rebif.

So insurance is setting that up said i should start by friday or early next week.
It's only a 50 dollar copay where as rebif costs 1700 a month out of pocket, just wanted to be prepared incase insurance threw a fit.

they are setting up a home nurse visit . I have been having difficulty a lot w/ my vision and other issues and am anxious to start my treatment but not anxious for the side affects.

I also did soly for the O N , It helped some but now that i am sick some symptoms are worsening so i am getting sag back in my face and on seems to be aggrevated woke up very blurred vision.

I also saw a urologist , i have over active bladder due to the ms.
I take oxytrol and didn't realize how bad it was til i got the patch cause i dont wake up at night like i used to and i go as long as a few hours instead of every hour without emptying.

I feel stupid using it at my age though. 30....

My daughter who is 8 has a hard time with my diagnosis . She is too smart and last year was too rough for her w/ me in the hospital so much that she doesnt understand.
I set an apt up w/ her guidance counceler at school to talk things over.

Also found a kids site for questions, but its not as active as i'ld like. If u know any good ones let me know. I knew i'ld have to educate them cause of the shots.

Why's mommy giving herself a shot. I just tell her over all that I will be ok and that i'm doing everything the dr.s say to ensure that i will be ok.

its all i can do.

how did u guys cope w/ initial dx...
i knew it was coming but still.
sarah