Hi All!!
An email was sent out about a month ago regarding the Phase II trial happening at SBMC in New York. It's a study of High-Dose Cyclophosphamide for progressing or worsening MS. For those of us who have tried 1st and 2nd line treatments (any of the interferons, solu-medrol, or Novantrone), this treatment may well be your next option. For me personally, the Novantrone is not an option right now. They've shown that even one treatment can later bring congestive heart failure, decreased cardiac output, or cancer itself. The cyclophosphamide does not have those "black box" warnings. True, it hasn't helped MS sufferers very much in the past, but this is a new regimen. The phase II results are out and below is the link to the article (which is free). I approached my doctor about it, and he contacted Dr. Elliot Frohman in Dallas. They are both very excited about the outcome but are quick to point out that it's not a miracle cure. It has different results for each patient. Some have had tremendous strides in recovery, some just a few, but all patients had some improvement. I'm going to start the treatment at the end of the month, and I will certainly pass along my experiences.

I encourage you to read the article, print it out, and take it to your doctor if it is something you think might help you.

Good luck!!

Patrice

http://archneur.ama-assn.org/